We became familiar with this rare childhood cancer, called Neuroblastoma.
In 2010, at age 2, our son, Alexander was diagnosed with stage 1 Neuroblastoma. The approach taken by the staff at Nemours / Alfred I. duPont Hospital for Children was truly amazing. The following three weeks after a mass on Alexander's spine was discovered (between T6 & T10), our son was aggressively attended to with tests. The surgery to remove the mass was three weeks following the discovery. For surgery Alexander spent three days at duPont Hospital. With all the medication, chest tubes, IVs it began to take some of his energy and strength. At times, Alexander was too tired to talk, so we started to give each other the 'thumbs up'.
With each visit to duPont Hospital, the staff has become familiar faces and kept up the high level of care. Post operation included monthly, quarterly, bi-annually imaging and testing. Alexander continues to remain cancer-free.
Today, our son is a Neuroblastoma survivor. Alexander's a smart, active 4th grader, soon to be 10 years old. Every night before Alexander and his brother, Regan (7) go to sleep we press our 'thumbs up' together to remind us to keep the positive energy flowing.
Nemours is one of the nation’s leading pediatric health systems, dedicated to advancing higher standards in children’s health. We’ve made a promise to do whatever it takes to prevent and treat even the most disabling childhood conditions—a promise of specialty medical care, advanced hospitalization, applied research, and advocacy integrated with health information, prevention and a continuous process of teaching and learning.
Affiliated with respected community and academic partners, Nemours cares directly for 250,000 children annually, treating every child as if they were our own. A uniquely enhanced electronic medical record system prompts caregivers to consider past experience in linking Nemours care-giving specialists with the patient family and referring physicians across time, geography, and condition to achieve optimal results for each child.